SMA DISEASE SURVEY STUDY

Dear Parents,

We send these questionnaires to you in order to determine the current quality of life of children with SMA disease and their parents. Our aim is to determine the situation of your children and you.

Participating in surveys is entirely voluntary. The approval of the Ethics Committee of Eskişehir Osmangazi University was obtained to convey these questionnaires to you.

This study, which will take 10 minutes in total, consists of 3 questionnaires, you can access the questionnaire forms via the buttons below.

Yours truly,

Prof.Dr. Kürşat Bora Çarman

Eskişehir Osmangazi University Faculty of Medicine Department of Pediatric Neurology