DISASTER AND EMERGENCY PREPARATORY SURVEY

In the world, the increasing frequency of natural disasters in recent years also leads to an increase in losses and damage and negatively affects the lives of millions of people every year. For patients who are bed-dependent, such as Spinal Muscular Atrophy (SMA) patients, and who maintain their vital functions depending on medical devices, the risk is greater. As an association for combating SMA disease, We aim to make the living spaces of patients connected to breathing apparatus safe from disaster and emergency risks and to set standards for housing needs after evacuation with the 'Let's Hold On To Life Together' project, which we are a partner in. To be a part of this study and share your experience and suggestions with us, please fill out the survey via the link below.

https://docs.google.com/forms/d/15mqOngkAbGXR6XgJqxQh3_PbSi7oxjE0E0v1L2Ls6QY/viewform?fbclid=IwAR2vurvnoESpf_8aswXy0YayZnyqnMjUa83qAOEN4rLDLlZ_ay_2Jg845S4&edit_requested=true