It is planned to “Fine the Care Burden of Education for Children Diagnosed with SMA Type 1 According to Their Situation”. Sedat ÖKTEM and Dr. Instructor Ethics approval was obtained from Istanbul Medipol University Non-Interventional Clinical Research Ethics Committee with the date of 23/06/2022 and Decision No 568 for the study to be conducted by its member Seval KUTLUTÜRK YIKILMAZ.
We invite families to the following SMA Type 1 demonstration by sharing the survey link below.