- Run for Goodness
- HOMEPAGE
- WHO ARE WE?
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WHAT ARE WE DOING?
- Medical Device Supports
- Medical Material Supports
- "We Are With You" Boxes
- Rental Support
- Other Supports
- Stationery Supports
- Education Scholarship
- Carrier Scan
- Newborn Screening
- Nusinersen Sodium Application Centers
- PGT
- TBMM Research Commission
- Visit / Meetings
- Our Memberships
- Seminars
- SMA Awareness Month
- I SMA Movie
- Our Publications
- Projects
- HOW CAN YOU SUPPORT?
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SMA
Association for Combating SMA Disease was established.
We started our social and public awareness activities with the strengthening of solidarity between patients and their relatives.
The first SMA treatment in the world for Type 1 patients 2017; It was included in the scope of reimbursement in 2019 for type 2-3 patients.
The Turkish Grand National Assembly SMA, ALS, DMD, MS and Rare Diseases Research Commission was established, in which we actively participated.
We have expressed our demands and views on surrogacy screening, newborn screening, PGD, education and social rights on all relevant platforms.
I Am Aware of SMA Our EU project has started.
We have delivered medical supplies, medical devices, invoices, food, clothing and hygiene supports to hundreds of families, which we have provided with corporate collaborations and donations.
Let's Hold on to Life Together EU project has started.
Our SMA Family Information Book is out.
The PGD method, which allows SMA carrier couples to have healthy babies, was included in the SSI reimbursement scope.
We reached our stakeholders with 125 online seminars, 23 trainings, 14 awareness videos.
To detect SMA carrier couples; The premarital SMA surrogacy screening program began.
SMA disease has been added to the National Neonatal Screening Program.
We started our gratuitous scholarship program for SMA patients, their siblings and children, with 62 scholars.
Our Nadir X-2 book, which tells about the adventures of Ata Child Ata, a patient with SMA, has been published.
We are now a big family with our supporters, donors and volunteers.
The SMA Foundation of Turkey was established in order to provide stronger support for the active participation of more individuals with SMA in life.
